PLEASE HELP

JAYME

IN HIS BATTLE AGAINST

SMA

1
SMA TYPE 1
0
Is the current state of the donations!
0
Without treathment the life expectancy with SMA Type 1 is months
0
Friends of Jayme

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2198000 € 100%

Jayme will leave for Hungary on Monday!

After months of struggling to collect the necessary amount of money and after waiting multiple days until all the results are known, it is finally time: Jayme will be going to Hungary next Monday!

Jayme’s parents have received all test results and we can share with you that they are all good. Jayme doesn’t have any antibodies for the viral gene therapy, all blood test were good, his lungs are completely clean and the family also tested negative for the corona virus. There is nothing that can keep them from leaving.

The full amount for the treatment has been transferred to the hospital in Budapest and the medical plane has been reserved and paid for. Next Monday Jayme will fly to Budapest with his parents where he will receive treatment with Zolgensma in early August.

We are so happy and grateful that we finally succeeded in getting Jayme the treatment he deserves! Jayme will get the treatment with Zolgensma!

Follow Jayme’s story. Click here for the latest news (in Dutch).

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We would like to thank the following companies in particular:

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